For the longest time, my daughter’s motto was, “I may not know where I’m going, but I want to get there fast.” Jessie wore overalls as a kid, which gave me something to hold onto. But she started pulling me by the hand as she…
Raising an Angel — Mary Kay

A Day in the Life of an Angel
First, she got her socks and shoes. Then her hat, Talker, and my pocketbook. When she handed her father the car keys, we knew she meant business. Maybe she’s stir crazy, or maybe she had something specific in mind to shop for, like ice cream? It could…

For many kids, September typically means it’s time to go back to school. But for my daughter, Jessie, it was a continuation. Jessie was fortunate to have a year-round program, or at least I felt that way at the time. Due to her significant delays, the…
If my daughter, Jessie, doesn’t like what she hears, she will walk away. When her boyfriend — more of a buddy than a romantic interest — gets frustrated, he raises his voice and curses like a sailor. Jessie is unimpressed by his outbursts and avoids him…
Angels Change Over Time
I was on sabbatical this summer and didn’t write for Bionews Services or my blog. Sometimes you don’t realize how burned out you are until you stop. But the longer I went without writing, the more anxious I became. When people asked if we…
This past weekend was action-packed from front to back. There was Jessie’s last dance of the season, a wedding to which the whole family was invited (doesn’t always happen), and another wedding that Jessie was expected to attend (we were the transportation). Actually, we are friends of the…
Angelman on the Trail
Last week, on a clear, sunny day, we decided to go on a hike. My daughter Jessie complained every step of the way, and I loved every minute of it. Not really, but I’ve learned to accept her lack of enthusiasm over the years. It seems whenever I…
Jessie took the Goober Grape out of the cabinet and handed it to me. I said, “Oh, you are hungry, I need to find some bread,” and proceeded to look for a loaf. Then I had to tell her we were out and that we would…
Angels Are Clever and Sneaky
Well, well, well, if Jess isn’t turning into a regular 007. Typically, when caught, she’s a deer in headlights, but not this time. While we were getting dressed for a Sweet 16 party, Jess was helping herself to treats tucked away…
Fear, anger, and disbelief were just some of the emotions experienced upon realizing my daughter was not making her milestones. These stages came in no particular order. I kept asking myself, “Why her, why me, why us?” Of course, I’m not the first person, nor will…
Having Fun While Building Skills
When it rains, it pours. When it snows, we play hooky. Today we are taking advantage of (hopefully) the last snowstorm of the season. We’d decided the night before to have a girls’ day. Jess had a delayed start. In her perfect world, we sleep in, watch…
Board games are meant to be fun, but they have not been a source of lighthearted entertainment for our family in the past. My daughter’s poor fine motor skills have hindered her manipulation of the pieces and caused her short attention span to kick in. She…
After writing this column for a year, quoting Forrest Gump sums up my state of mind: “And that’s all I have to say about that.” I’ve come to a point where I don’t have much to share. Words do flow better…
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