Posts by: Mary Kay

Mary Kay

Mary Kay is a blogger with a mission. She wants to make her non-verbal daughter's world bigger. She writes about their Angelman Syndrome journey and how their life changed when they found her AAC voice.

June 19, 2020June 17, 2020

This Is What Keeps an Angel Mom Up at Night

Columns, Raising an Angel - a column by Mary Kay

Three things keep me up at night: worrying that my daughter’s seizures will return, thunderstorms, and a waning gibbous moon. This past month, we hit the trifecta and experienced ... Read more

May 22, 2020May 21, 2020

This Year Has Gone to the Dogs

Columns, Raising an Angel - a column by Mary Kay

Since 2020 has gone to hell in a handbasket, it’s necessary to step away from the 24/7 news cycle. I don’t want to focus on the virus. Instead, I ... Read more

April 17, 2020April 15, 2020

Keeping Your Angel Busy

Columns, Raising an Angel - a column by Mary Kay

Captain’s Log, Stardate 04.14.2020: This is our 34th day of self-quarantine. To survive, we’ve had to adapt to new restrictions and find distractions to prevent ourselves from losing our ... Read more

March 20, 2020March 19, 2020

Cooking Helps My Daughter Develop Daily Living Skills

Columns, Raising an Angel - a column by Mary Kay

I learned to cook by my mother’s knee. We baked cookies and kneaded dough. She even would give me cake batter for my turquoise Easy-Bake Oven. Sometimes, Mom would ... Read more

February 21, 2020February 20, 2020

My Angel Is Becoming More Independent

Columns, Raising an Angel - a column by Mary Kay

For the longest time, my daughter’s motto was, “I may not know where I’m going, but I want to get there fast.” Jessie wore overalls as a kid, which gave ... Read more

November 15, 2019November 18, 2019

With Our Daughter at Camp, We Rediscovered the Joy of Date Night

Columns, Raising an Angel - a column by Mary Kay

For many kids, September typically means it’s time to go back to school. But for my daughter, Jessie, it was a continuation. Jessie was fortunate to have a year-round ... Read more

October 18, 2019October 15, 2019

Angels Need to Learn Proper Manners, Too

Columns, Raising an Angel - a column by Mary Kay

If my daughter, Jessie, doesn’t like what she hears, she will walk away. When her boyfriend — more of a buddy than a romantic interest — gets frustrated, he ... Read more

September 20, 2019September 17, 2019

Angels Change Over Time

Columns, Raising an Angel - a column by Mary Kay

I was on sabbatical this summer and didn’t write for BioNews Services or my blog. Sometimes you don’t realize how burned out you are until you stop. But the ... Read more

June 7, 2019June 5, 2019

Familiarity Is the Foundation for Acceptance

Columns, Raising an Angel - a column by Mary Kay

This past weekend was action-packed from front to back. There was Jessie’s last dance of the season, a wedding to which the whole family was invited (doesn’t always happen), ... Read more

May 10, 2019May 8, 2019

Angelman on the Trail

Columns, Raising an Angel - a column by Mary Kay

Last week, on a clear, sunny day, we decided to go on a hike. My daughter Jessie complained every step of the way, and I loved every minute of ... Read more

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