Mary Kay is a blogger with a mission. She wants to make her non-verbal daughter's world bigger. She writes about their Angelman Syndrome journey and how their life changed when they found her AAC voice.
After the service, we were heading for the door when we bumped into an acquaintance of my husband. After introductions, the men talked while the wife tried to rein ... Read more
If anyone ever asks me what is the best augmentative and alternative communication (AAC) device for their child, my response is, “the one they will use.” I know that ... Read more
The plan was for Dad to take her to the gym — something they could do together. I planned on recovering from a busy day while they were out. ... Read more
Just one look and I knew my well-laid plans for the day were for naught. Jessie woke up congested and tapping her nose. Sure signs of an impending cold. ... Read more
We are keenly aware of the challenges of Angelman syndrome: seizures, sleeplessness, and being nonverbal to name a few. However, the disorder has positive aspects, too. My favorite of ... Read more
Rainy days and Mondays always slow us down, and when it rains on a Monday, we want to stay home. That’s what we did this week. Jess had gotten ... Read more
When it was time to greet each other, Jess reached her hand out to everyone within arm’s reach. She didn’t look people in the eye, but coyly smiled while ... Read more
There has been a nightly pattern. Jessie puts herself to bed first, then I turn in, and then my husband follows an hour or so later. He falls into ... Read more
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