In the past month, I’ve felt pangs of guilt about several things while caring for my 2-year-old son, Jude, who lives with Angelman syndrome. I feel guilty while helping Jude learn to communicate or develop other skills for daily life. I’m fearful that I’m holding him back from learning…
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Some people with Angelman syndrome may experience a phenomenon known as gelastic syncope, where laughter leads to a loss of consciousness, a report involving a teenager and two adults highlights. “The goal of this article is to bring specific awareness of gelastic syncope to clinicians and caregivers and to…
As a caregiver, I understand that raising awareness about Angelman syndrome requires us to proactively educate the public. This can be done via social media or by organizing and participating in advocacy events. No gesture is too small. We’re encouraging our community to show support on International Angelman…
Becoming educated and informed about Angelman syndrome is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your Angelman syndrome journey.
There is no cure for Angelman syndrome yet, but there are treatments that can help manage the disease. Learn more about the approved and experimental therapies here.
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