Columns

February 15, 2019February 14, 2019

‘And That’s All I Have to Say About That!’

Columns, Raising an Angel - a column by Mary Kay

After writing this column for a year, quoting Forrest Gump sums up my state of mind: “And that’s all I have to say about that.” I’ve come to a ... Read more

January 25, 2019January 24, 2019

Fun Times with My Angel

Columns, Raising an Angel - a column by Mary Kay

When the cat’s away, the mice will play. With Jessie’s dad out of town all week, life was different. Our schedule didn’t revolve around him and we took full ... Read more

January 11, 2019January 9, 2019

Whose Art Is It Anyway?

Columns, Raising an Angel - a column by Mary Kay

You know what is worse than a forgery? Art that comes home that was completed by an aide and not by my child. The first clue is that the ... Read more

January 4, 2019January 2, 2019

Addressing Those Awkward AAC Moments

Columns, Raising an Angel - a column by Mary Kay

After the service, we were heading for the door when we bumped into an acquaintance of my husband. After introductions, the men talked while the wife tried to rein ... Read more

December 21, 2018December 19, 2018

Looking Forward, Looking Back

Columns, Raising an Angel - a column by Mary Kay

Why is it that when you see a photo of a baby, you can’t imagine what they will look like when they are grown, yet when you meet someone ... Read more

December 14, 2018December 13, 2018

Choosing an AAC Device for Your Angel

Columns, Raising an Angel - a column by Mary Kay

If anyone ever asks me what is the best augmentative and alternative communication (AAC) device for their child, my response is, “the one they will use.” I know that ... Read more

December 7, 2018December 6, 2018

Angels Need to Keep Moving

Columns, Raising an Angel - a column by Mary Kay

The plan was for Dad to take her to the gym — something they could do together. I planned on recovering from a busy day while they were out. ... Read more

November 30, 2018November 29, 2018

Winter Colds and Snowstorms

Columns, Raising an Angel - a column by Mary Kay

Just one look and I knew my well-laid plans for the day were for naught. Jessie woke up congested and tapping her nose. Sure signs of an impending cold. ... Read more

November 16, 2018November 15, 2018

An Angel’s Gift of Empathy

Columns, Raising an Angel - a column by Mary Kay

We are keenly aware of the challenges of Angelman syndrome: seizures, sleeplessness, and being nonverbal to name a few. However, the disorder has positive aspects, too. My favorite of ... Read more

November 9, 2018November 7, 2018

Rainy Days and Mondays Don’t Always Get You Down

Columns, Raising an Angel - a column by Mary Kay

Rainy days and Mondays always slow us down, and when it rains on a Monday, we want to stay home. That’s what we did this week. Jess had gotten ... Read more