Columns

How We Kissed Our Angel’s Reflux Goodbye

Reflux and constipation are not pretty words to hear. Unfortunately, when you’re the parent of an Angel, you may hear them a lot. My 11-year-old Angel, Juliana, is now far removed from the digestive issues that plagued her as an infant and a toddler.

Modified Trick-or-Treating Saves Halloween for Our Family

When you’re raising a child with Angelman syndrome, even Halloween plans need modifications. For the past several years, we have been changing the way we handle the beloved event of trick-or-treating. The modifications resulted in part from my Angel’s anxiety when traveling out and about on Halloween night. Now…

When Perfect Plans Fail, Just Do Them Over

As the parent of an Angel, I have learned that things don’t always go as planned. My 11-year-old Angel, Juliana, is getting better at a lot of things as she gets older. However, sometimes she continues to have unpredictable behavior. It is medically proven that Angels have…

My Angel’s Superpower Shines on World Smile Day

If I hadn’t seen it countless times, I would never believe a smile could make someone’s day. Leave it to my 11-year-old Angelman child’s happy demeanor to do just that. The first Friday in October is World Smile Day. It’s supposed to be a day for a random act…

When a Big Win Blossoms From a Little Shopping Trip

Taking my 11-year-old Angel, Juliana to the store with me is a trip that always has the potential to lead to an unexpected or unwelcome adventure. However, I received a pleasant surprise when we headed to the store on a recent hot summer day. We made it through the entire…

Staycations Beat Vacations for Easing Caregiver Stress

When raising a child with Angelman syndrome, life can be stressful. Taking vacations to ease that stress can sometimes have the opposite effect. Although my family doesn’t have picture-perfect exotic getaways, we do have a plan for relaxing that works for us. We don’t take a lot of vacations,…

Labels Speak for My Angel When She Can’t Chime In

Because many Angels are considered nonverbal, it is important for parents to get creative to help them communicate. My 11-year-old daughter, Juliana, is beginning to use her talker to communicate, but it will take some time. Through the years, I have relied on labels, notes, and even…