Raising an Angel — Mary Kay

Orthotics. I’ve not been a fan. Jess had seen three private-practice orthopedists and was also treated at a Shriners Hospital. Each prescribed an ankle-foot orthosis (AFO) for her right foot. Except for their…

We arrived at the dance, and just before unbuckling her seatbelt, she said, “I love you.” Then, off she went. Isn’t this how it is supposed to be?…

From as early as I can remember, my mom let me help her in the kitchen. I can’t say that I was very helpful, but it was her way of keeping me occupied…

As soon as Roxy and I walked into the picnic area, a mother rushed up to me and said her son was afraid of dogs and asked us to keep our distance. The…

It’s hard to forget the first Angel I met. She was an easy baby, only fussed if tired, hungry, or had to poo. When she was barely a month old, during a bath,…

The day my daughter came home with Speak for Yourself (SFY), she deleted it. It was Friday afternoon, the school was closed, and I freaked because I had never used…

There was a man walking behind me. He had longer strides than I. Within a few minutes, he caught up with me, and we walked together for a while. As soon as he spoke, I…

In our early years, friends, acquaintances, and strangers off the street would ask what the matter was with my daughter. If they didn’t ask, their puzzled faces gave them away. It’s what people…

Forewarning: Don’t say the following phrase to an Angelman parent, or any special needs parent for that matter. “I don’t know how you do it!” I’m sure this is meant to be a…

While navigating school and medical issues, we attended a mommy and me class. We made friends and a playgroup formed. At this age, Jess could keep up with the boys. We were…

Part two of a series. Read part one here.  Have you ever gone to bed, got comfy, finally relaxed, and then realized you needed the bathroom? During inconvenient times, I’ve often wished that someone could “go”…

There was more brewing with Jess than her learning differences. She was 4 when we began toilet training. This went well until it didn’t. Long story short, she was having urinary tract infections (UTI).