When the Aspire results came out, I read them twice. First, as the CEO of the Angelman Syndrome Foundation, my mind went to our families. What do they need to know? What questions will they have? How can we support them? Then I read them as Jackson’s mom.
Guest Voices
This article was provided by our partner, the Angelman Syndrome Foundation. It has been reviewed by Bionews for accuracy and relevance. The views and opinions expressed are those of the author and do not necessarily reflect the views of Bionews or Angelman Syndrome News. I’m writing this because I don’t…
Recent Posts
- After Aspire trial: Holding on to hope for the Angelman syndrome community
- 3 antiseizure drugs show effectiveness in Angelman children, study says
- What we pack for the hospital for a child with Angelman syndrome
- Finding a swimming program tailored to a child with Angelman syndrome
- Once-promising Angelman treatment fails to meet main goal in trial
- Parenting a child with Angelman syndrome requires constant vigilance
- Phase 3 trial begins testing potential Angelman syndrome treatment
- Our nonverbal son’s hospitalization taught us some important lessons
- Angelman clinical trial enrolls children to test new treatment
- Angelman syndrome seizures are unpredictable, but we carry on