Columns

You know what is worse than a forgery? Art that comes home that was completed by an aide and not by my child. The first clue is that the work is too precise. The second clue is Jessie doesn’t care to…

After the service, we were heading for the door when we bumped into an acquaintance of my husband. After introductions, the men talked while the wife tried to rein in her young teen son. Jessie wanted to engage and twice reached for her device, but the…

Why is it that when you see a photo of a baby, you can’t imagine what they will look like when they are grown, yet when you meet someone as an adult, it’s not difficult to identify their photo when they were little? I guess we…

If anyone ever asks me what is the best augmentative and alternative communication (AAC) device for their child, my response is, “the one they will use.” I know that doesn’t answer their question, but it is what we’ve learned to be true.

The plan was for Dad to take her to the gym — something they could do together. I planned on recovering from a busy day while they were out. The next thing I knew, I was told to get my rear in gear and join them.

Just one look and I knew my well-laid plans for the day were for naught. Jessie woke up congested and tapping her nose. Sure signs of an impending cold. Within moments, plan B was enacted. I called her program to let them know she’d be out…

We are keenly aware of the challenges of Angelman syndrome: seizures, sleeplessness, and being nonverbal to name a few. However, the disorder has positive aspects, too. My favorite of my daughter’s traits are her sunny disposition and ready smile. I love that she…

Rainy days and Mondays always slow us down, and when it rains on a Monday, we want to stay home. That’s what we did this week. Jess had gotten up once during the night and was moving slowly. Upon seeing the rain and the wind…

When it was time to greet each other, Jess reached her hand out to everyone within arm’s reach. She didn’t look people in the eye, but coyly smiled while looking to the side. A few minutes later, the pastor shared why some congregants raise…

There has been a nightly pattern. Jessie puts herself to bed first, then I turn in, and then my husband follows an hour or so later. He falls into slumber as soon as his head hits the pillow, Jess has been asleep for hours,…