Words a doctor should never say to a mother: “Have another child and be happy.” What does he mean by this? What about this child? What can be done for her? He said, “She will never walk or talk, just love her as best you…
Columns
Recent Posts
- The demands of caring for a child with Angelman can really add up
- Specialty clinic maps lifelong care needs for Angelman syndrome
- After Aspire trial: Holding on to hope for the Angelman syndrome community
- 3 antiseizure drugs show effectiveness in Angelman children, study says
- What we pack for the hospital for a child with Angelman syndrome
- Finding a swimming program tailored to a child with Angelman syndrome
- Once-promising Angelman treatment fails to meet main goal in trial
- Parenting a child with Angelman syndrome requires constant vigilance
- Phase 3 trial begins testing potential Angelman syndrome treatment
- Our nonverbal son’s hospitalization taught us some important lessons