Advocacy partner: Angelman Syndrome Foundation
About the Angelman Syndrome Foundation
The mission of the Angelman Syndrome Foundation is to advance the awareness and treatment of Angelman syndrome through education and information, research, and support for individuals with Angelman syndrome, their families and other concerned parties.
Contact: Amanda Moore – CEO
Phone: 800-432-6435
Email: [email protected]
Upcoming events
About Advocacy Partners
The information above is provided by our partner. Learn more about our advocacy partners here.
This article was provided by our partner, the Angelman Syndrome Foundation. It has been reviewed by Bionews for accuracy and relevance. The views and opinions expressed are those of the author and do not necessarily reflect the views of Bionews or Angelman Syndrome News. I’m writing this because I don’t…
Resources
Newly Diagnosed Resource
If you’ve recently received an Angelman syndrome diagnosis, we want you to know—you are not alone. While this news can feel overwhelming, it’s also the beginning of a journey filled with support, connection, and hope. The Angelman Syndrome Foundation is here to walk alongside you with resources, information, and a community that understands.
Are you or a loved one newly diagnosed?
ASF Podcast on YouTube
In each episode, guests discuss various aspects of Angelman syndrome to provide resources and education to families. From a deep dive into the genetics of Angelman syndrome, to understanding clinical treatments for treating seizures to discussions with IEP specialists and communication specialists, we are here to help as many families as possible on this journey.