Emily Malcolm, PhD,  —

Caring for a child with a chronic disease like Angelman syndrome can be challenging and exhausting. Parents and caregivers often feel rundown and tired, to an extent that’s hard for others to understand. One analogy that can help friends and family members in grasping the strain you are living under…

Caring for a child or relative with a rare disorder such as Angelman syndrome can be challenging, with information hard to find about the disease or doctors who specialize in treating it. As a result, parents and caregivers can easily feel isolated. Some may find it difficult to talk…

As a parent, learning that your child has a rare disease like Angelman syndrome can be very difficult. One of the first questions parents often ask is what the diagnosis means for their child’s future and how the disease is going to affect their life expectancy. What…

Many Angelman syndrome patients are non-verbal and have difficulty communicating with parents or caregivers. To help these patients with their verbal, motor, and social skills, music can be used effectively in therapy. What is music therapy? In the established health profession of music therapy, therapists use music to…

Angelman syndrome, a rare genetic disorder, is characterized by muscle weakness and physical and mental developmental delays. Many Angelman patients are also known to experience epileptic seizures. Exercise has been shown to improve strength, coordination, balance, and posture in people with Angelman syndrome. However, physical weakness and…

An electroencephalogram (EEG) is a test that can be used to diagnose Angelman syndrome and monitor progression of the disease. What is an EEG? An EEG is a test that measures electrical activity in the brain using small sensors that are placed on the head for the…

Caring for a child with a chronic disease like Angelman syndrome can be stressful, and stress can contribute to anxiety and depression, among other ills. It’s important for caregivers to practice self-care to ensure that their own health and mental well-being are not affected. Here are…

Being the parent or caregiver of a patient with a chronic disease such as Angelman syndrome can be an exhausting and stressful job. Stress can be a contributing cause of anxiety and depression, among other issues. It is important for parents and caregivers to practice self-care…

Caring for a child with Angelman syndrome can be stressful for parents and caregivers, which can impact their health, causing headaches, insomnia, anxiety, muscle cramps, and other symptoms. If you think that stress is the cause of your symptoms, or if you’re unable to manage your stress, talk…

Angelman syndrome is a rare genetic disorder that causes muscle weakness starting from a young age. Children with the disorder often struggle with physical and mental developmental delays, but they can still go to school and socialize. One of the tools their parents can use is an individualized…