Feb. 15 is International Angelman Day (IAD), an annual event that brings together advocates worldwide to raise awareness and support people affected by Angelman syndrome. IAD was started in 2013 by Angelman parents who saw a need for more connection and support for the rare disease, which is caused…
Discussion
After my son, Jude, was diagnosed with Angelman syndrome at 16 months old, I kept hearing the same comment from other seasoned Angelman parents: “Traveling is so much easier when they’re younger.” At the time, I was skeptical. But now that Jude is 3 and has experienced short- and…
Following a low-sugar, high-fat eating plan — known as a ketogenic, or keto, diet — may benefit children with Angelman syndrome, though more research is needed to know for sure, according to the findings of a new study from Spain. In the small trial, dubbed DIANE, children with Angelman…
Becoming educated and informed about Angelman syndrome is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your Angelman syndrome journey.
There is no cure for Angelman syndrome yet, but there are treatments that can help manage the disease. Learn more about the approved and experimental therapies here.
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