A family copes: How to manage bowel incontinence in our Angel

When you’re living with Angelman syndrome, some topics are just hard to bring up. Incontinence is one of them. But now that we have a plan to tackle this challenge with our 13-year-old Angel, Juliana, I feel more comfortable writing about it. Gastrointestinal issues are quite common…

Toilet Training in Angelman Syndrome

Children and adults with Angelman syndrome can experience incontinence. Despite cognitive and behavioral problems associated with the neurological disease, you can still toilet train your child, however. Here is some information about incontinence and tips for helping you with toilet training your child. About Angelman syndrome Angelman is…

High Rates of Incontinence Associated with Angelman Syndrome Children, Study Says

Children and teenagers with Angelman syndrome have particularly high rates of incontinence, especially if they also suffer from adaptive disabilities and epilepsy, a study reports. The study, “Incontinence in persons with Angelman syndrome,” published in the European Journal of Pediatrics, investigated the rate of incontinence and associated psychological…

Princess and the Pee, Part 2: Toileting Independence

Part two of a series. Read part one here.  Have you ever gone to bed, got comfy, finally relaxed, and then realized you needed the bathroom? During inconvenient times, I’ve often wished that someone could “go” for me. No doubt, Jess feels the same way.