Caring for a child with Angelman syndrome can be stressful for parents and caregivers, which can impact their health, causing headaches, insomnia, anxiety, muscle cramps, and other symptoms. If you think that stress is the cause of your symptoms, or if you’re unable to manage your stress, talk…
Angelman syndrome is a rare genetic disorder that causes muscle weakness starting from a young age. Children with the disorder often struggle with physical and mental developmental delays, but they can still go to school and socialize. One of the tools their parents can use is an individualized…
Caring for a child with a developmental disorder such as Angelman syndrome is challenging. Every child develops at a different rate and faces unique challenges. One issue that can be difficult to cope with for the parents of a child with Angelman syndrome is speech or language delays. What…
For parents of children with Angelman syndrome, ensuring their child has the best care at school and daycare can be challenging. Building a treatment plan can help children receive the care they need at school, and make sure that teachers and caregivers have the information needed to provide…
Effectively managing your child’s health can be extremely challenging. There is a lot to keep track of with chronic medical conditions, but staying organized can help. Here are 5 tips for making each doctor’s visit count when you have a child with Angelman syndrome. Make a list of your…
As a parent or caregiver of a child with Angelman syndrome (a rare neurological disease characterized by delayed physical and mental development), it is easy to feel overwhelmed. It can also be hard for friends and family members to know how to help. Caregivers may feel “burnt out” or…
As a parent, finding out that your child may need a surgical procedure can be frightening. Parents and caregivers of children with Angelman syndrome may have additional questions and concerns for the surgical team and the anesthesiologist, because people with this complex neurological genetic disorder may not respond…
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