Being the parent of someone with a chronic disease, such as Angelman syndrome, can be challenging and exhausting. Many parents and caregivers also worry about what will happen if they are unable to care for their child due to age, an accident, or infirmity. If you take care of…
Caring for a baby with Angelman syndrome can be difficult. Among other challenges, infants with the disorder are often born with very weak muscle tone and have difficulty suckling, swallowing, and nursing. What are the feeding difficulties in Angelman syndrome? Infants with Angelman syndrome have weak muscle tone,…
Caring for a child with a chronic disease like Angelman syndrome can be challenging and exhausting. Parents and caregivers often feel rundown and tired, to an extent that’s hard for others to understand. One analogy that can help friends and family members in grasping the strain you are living under…
Caring for a child or relative with a rare disorder such as Angelman syndrome can be challenging, with information hard to find about the disease or doctors who specialize in treating it. As a result, parents and caregivers can easily feel isolated. Some may find it difficult to talk…
As a parent, learning that your child has a rare disease like Angelman syndrome can be very difficult. One of the first questions parents often ask is what the diagnosis means for their child’s future and how the disease is going to affect their life expectancy. What…
Many Angelman syndrome patients are non-verbal and have difficulty communicating with parents or caregivers. To help these patients with their verbal, motor, and social skills, music can be used effectively in therapy. What is music therapy? In the established health profession of music therapy, therapists use music to…
Angelman syndrome, a rare genetic disorder, is characterized by muscle weakness and physical and mental developmental delays. Many Angelman patients are also known to experience epileptic seizures. Exercise has been shown to improve strength, coordination, balance, and posture in people with Angelman syndrome. However, physical weakness and…
An electroencephalogram (EEG) is a test that can be used to diagnose Angelman syndrome and monitor progression of the disease. What is an EEG? An EEG is a test that measures electrical activity in the brain using small sensors that are placed on the head for the…
Caring for a child with a chronic disease like Angelman syndrome can be stressful, and stress can contribute to anxiety and depression, among other ills. It’s important for caregivers to practice self-care to ensure that their own health and mental well-being are not affected. Here are…
Being the parent or caregiver of a patient with a chronic disease such as Angelman syndrome can be an exhausting and stressful job. Stress can be a contributing cause of anxiety and depression, among other issues. It is important for parents and caregivers to practice self-care…
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