Columns

Everyone Missed the Signs

Every Angelman syndrome person has a different story. This is the beginning of ours. Once Jess was diagnosed and labeled with cerebral palsy (rather, misdiagnosed), we were directed to an early intervention program. Through play, she was immersed in language and cognitive skill development. I…

Please Know that I Understand

(Courtesy of Mary Kay) It’s rude to talk about someone behind their back. It’s even more impolite to talk about them in their presence. Unfortunately, this happens to the nonverbal all the time. Even worse, it’s assumed that because Jess isn’t talking, she doesn’t understand what’s…

Where Our Story Begins: An Introduction to ‘Raising an Angel,’ a Column by Mary Kay

Words a doctor should never say to a mother: “Have another child and be happy.” What does he mean by this? What about this child? What can be done for her? He said, “She will never walk or talk, just love her as best you…