Recent Posts
- Thanks to Angelman syndrome research, I’m still hopeful for a cure
- Ube3a protein helps regulate brain connections during development
- Friends and routines help ease unexpected care for my Angel
- How I respond to being overwhelmed in life with Angelman
- $5M gift to UC San Diego supports gene therapy work for rare diseases
- A family copes: How to manage bowel incontinence in our Angel
- Ways of measuring outcomes for use in Angelman clinical trials detailed
- Accepting advice and trusting the professionals in my Angel’s life
- Trial data support Ovid’s decision to stop its OV101 program in 2021
- How maximizing parent-teacher relationships benefits my Angel