Caring for a child with a developmental disorder such as Angelman syndrome is challenging. Every child develops at a different rate and faces unique challenges. One issue that can be difficult to cope with for the parents of a child with Angelman syndrome is speech or language delays. What…
For parents of children with Angelman syndrome, ensuring their child has the best care at school and daycare can be challenging. Building a treatment plan can help children receive the care they need at school, and make sure that teachers and caregivers have the information needed to provide…
Effectively managing your child’s health can be extremely challenging. There is a lot to keep track of with chronic medical conditions, but staying organized can help. Here are 5 tips for making each doctor’s visit count when you have a child with Angelman syndrome. Make a list of your…
As a parent or caregiver of a child with Angelman syndrome (a rare neurological disease characterized by delayed physical and mental development), it is easy to feel overwhelmed. It can also be hard for friends and family members to know how to help. Caregivers may feel “burnt out” or…
As a parent, finding out that your child may need a surgical procedure can be frightening. Parents and caregivers of children with Angelman syndrome may have additional questions and concerns for the surgical team and the anesthesiologist, because people with this complex neurological genetic disorder may not respond…
A diagnosis of Angelman syndrome can be challenging for patients and their families, with information about this rare disease sometimes difficult to find. Many parents and caregivers may find it helpful to connect with other families and advocacy groups. Here are some frequently asked questions and answers about Angelman syndrome.
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