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Recent Posts

  • Angelman syndrome seizures are unpredictable, but we carry on
  • $32.5M to advance rugonersen into late-stage testing for Angelman
  • GTX-102 data show continued developmental gains in Angelman
  • What standardized assessments miss about my son with Angelman
  • Surgery usually corrects misaligned eyes in kids with Angelman, study finds
  • The joys and challenges of disability equipment for children with Angelman
  • Goals that matter most for our child living with Angelman syndrome
  • Home videos may help doctors evaluate Angelman patient skills
  • After hesitation, we finally took steps to address our son’s disrupted sleep
  • International Angelman Day: Why Feb. 15 matters for families


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This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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