Raising an Angel — Mary Kay

Every Angelman syndrome person has a different story. This is the beginning of ours. Once Jess was diagnosed and labeled with cerebral palsy (rather, misdiagnosed), we were directed to an early intervention program. Through…

(Courtesy of Mary Kay) It’s rude to talk about someone behind their back. It’s even more impolite to talk about them in their presence. Unfortunately, this happens to the nonverbal all the time. Even worse,…

Words a doctor should never say to a mother: “Have another child and be happy.” What does he mean by this? What about this child? What can be done for her? He said, “She…