An Adoption Question That Needs No Response
People used to ask me sometimes if my husband and I knew when we adopted our daughter, Juliana, that she had Angelman syndrome. My answer, of course, has always been no, but I never understood why that was relevant.
Now that Juliana is 11, we are rarely asked this question, but we were asked it a lot when she was younger.
I don’t think people were trying to be offensive, and many were simply expressing concern. But it always used to bother me. What I really heard was, “Why would you adopt Juliana if you knew she had Angelman syndrome?”
If I were crass, I would ask in response, “What about you? Would you give up your kid just because she isn’t perfect?” Of course, I would never do that, but even a wittier response would have been better than the simple no I usually gave them.
Our grass is green enough
Who wouldn’t wonder how life would change after learning that your child has a rare neurogenetic disorder? Toss in the mix the fact that my husband and I are black and Juliana is biracial with blue eyes, and things can be perplexing to people. Our life is different on so many levels, and it’s not a typical life. I’m careful that I don’t let this affect me negatively because in the scheme of things I have a great life. I’m raising two beautiful children and I have a wonderful husband.
But if you catch me on a challenging day, or at the wrong moment, I might not feel as blessed as I am. I know many people who wake up each day feeling challenged, or who don’t feel blessed. They may not be raising a child with Angelman syndrome, or with special needs, but everyone faces difficult times.
A different forever family
Still, happiness, joy, and contentment are all choices. Even when you are raising a kid with Angelman syndrome. It takes work to see a glass as half full. It’s all about perspective.
Adopting Juliana has been one of the best decisions of my life. Knowing and loving her helps me to be a better version of myself. Almost 12 years ago, my husband and I got to foster a precious baby. And then we got to adopt her. But from the day she entered our home, Juliana was ours, so it doesn’t really matter what we knew about her condition or when we knew it. Our child has Angelman syndrome, and we don’t love her any less because of it.
Nobody has asked me “the question” in a long time. But I am more witty now and I have rehearsed a response. It goes like this: “Did you know Juliana had Angelman syndrome before you adopted her?” someone asks me. I smirk. “Look at me with her,” I respond. “Does that question really need an answer?”
Note: Angelman Syndrome News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Angelman Syndrome News, or its parent company, BioNews, and are intended to spark discussion about issues pertaining to Angelman syndrome.