Supporters globally are poised for International Angelman Day (IAD), set aside annually on Feb. 15, to call attention to…
Articles by Mary Chapman
The first patient organization for those living with Angelman syndrome in the Middle East and North Africa — a geographic…
A $5 million gift is supporting a University of California San Diego (UC San Diego) gene therapy initiative aimed…
Angelman Syndrome Foundation Canada (ASF Canada), formerly the Canadian Angelman Syndrome Society (CASS), officially opens on Oct. 21 with…
To help patients and their families make the most of available treatments, the clinical diagnostics laboratory Baylor Genetics is…
The Angelman Syndrome Foundation (ASF) is seeking applicants for its first Jacob Pritzker Fellowship, a program established to…
A year after it was established by the Center for Drug Evaluation and Research (CDER), the Accelerating Rare disease…
JettSet1 Enterprises is partnering with preclinical stage biopharmaceutical company Biom Therapeutics to help it develop BIO017, a plant-derived cannabinoid…
The National Organization for Rare Disorders’ (NORD) “Living Rare, Living Stronger Patient and Family Forum” is back in person…
A new medical network connects Angelman syndrome (AS) and dup15q syndrome patients with specialized, high-quality care globally. The initiative,…