Angelman Syndrome Foundation Canada to open with charity ball

Stronger Together fundraiser and celebration will be held in Ontario, Oct. 21

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by Mary Chapman |

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Angelman Syndrome Foundation Canada (ASF Canada), formerly the Canadian Angelman Syndrome Society (CASS), officially opens on Oct. 21 with the Stronger Together Charity Ball, an evening of celebration and inspiration.

The black-tie event, which is intended to raise awareness about Angelman syndrome, also kicks off ASF Canada’s affiliation with the Angelman Syndrome Foundation (ASF), which was announced in April.

The swanky affair will be held at The Carlu in Toronto, Ontario, and include a reception, silent auction, and dinner, followed by entertainment and dancing. Tickets are $175, with funds going to support Canadian families and ASF Canada activities.

“Join us for a spectacular evening filled with excitement, hope, and meaningful connections,” a press release announcing the event states. “With dinner, music, dancing, and celebration, this event promises to be a night you won’t want to miss! You’ll have the chance to meet our passionate team, learn about our mission to improve the lives of individuals with Angelman syndrome and their families, and help fundraise for a community that’s making a real difference.”

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ASF, CASS team up to broaden reach within Angelman community

The Edmonton, Alberta organization’s affiliation with the Illinois-based ASF means Angelman families will have increased access to family services and support, more opportunities for clinical trials, and more clinics and research in Angelman syndrome, a complex neurological genetic disorder that affects about 1 in 15,000 people.

For its part, the ASF supports the Angelman community and helps fund research — more than $15 million to date — to advance understanding about the disease and develop new treatments. The organization, which has worked extensively with CASS in the past, funds 25 ASF Clinics around the world that offer top-shelf Angelman care, with four more planned for this year. The collaboration will enable ASF Canada to establish more ASF Clinics in Canadian hospitals to better serve families in that country.

The nonprofit groups, each more than 30 years old, will leverage their networks and shared mission to assist and fortify Angelman syndrome families. The groups will operate independently, with their own budgets, boards, and staff, but will partner on some efforts including clinic development. Each organization will present its family conferences on alternate years.

Charity ball attendees will learn more about the collaboration at the event.

“… Mark your calendars, dust off your dancing shoes, and get ready to join us in creating a brighter future for those living with Angelman syndrome,” ASF Canada states. “Together, we can raise funds, more awareness, foster more support, and make an even greater impact for our loved ones!”