Half a year has gone by since disgraced pharma executive Martin Shkreli was sentenced to seven years in federal prison…
Articles by Larry Luxner
More than 700 medical experts, pharmaceutical executives, patient advocates, and others are expected to converge on Washington, D.C., next month…
Two organizations that specialize in Angelman syndrome have scheduled back-to-back conferences at the University of North Carolina (UNC) at…
What a difference a number makes — in this case, the “1” at the end of Q93.51. The added digit,…
As President Trump signed the recently passed Right to Try legislation into law in a White House ceremony, Jordan McLinn…
Finding treatments and potential cures for rare diseases is crucial, but so is the quality of patients’ lives — a…
The National Organization for Rare Disorders (NORD) will celebrate the 35th anniversary of both the 1983 Orphan Drug Act and…
The European Union isn’t doing enough to protect the 30 million or so people with rare diseases who live in…
At least 800 people representing some 45 countries are soon expected to gather in Austria’s capital city, Vienna, for…
A little-known government entity within the National Institutes of Health (NIH) is helping to lead U.S. efforts to speed…