Julie Russell,  —

Rare Disease Day 2023

Recent Posts

• 5 ways of quickly calming anxiety in my Angel
• UBE3A protein lacking in patients needed early for brain circuitry
• The benefits of organization in life with Angelman syndrome
• Positive facial expressions may hold the attention of AS patients longer
• Squats get added to the list of things my Angel can do
• Seizures, altered brain structures linked in Angelman children: Study
• Despite iPad incidents, my Angel’s screen time is good practice
• Sleep duration, quality improves with behavioral intervention
• Educating others about Angelman syndrome on my own terms
• Severe seizure events found to be common in Angelman patients