With the U.S. midterm elections now less than two weeks away, patient advocacy groups are solidly focused on a range…
Articles by Ana de Barros, PhD
To celebrate the Canadian Angelman Syndrome Society’s (CASS) 25th anniversary, the society hosted its 2018 annual conference April 20-21,…
The U.S.’s fifth Angelman syndrome clinic has opened at Vanderbilt University Medical Center in Nashville. The Angelman Syndrome Clinic at…
Purdue University is conducting a telehealth study to help identify autism symptoms in infants with rare neuro-genetic diseases who might…
On the last day of February every year, hundreds of patient organizations worldwide get together to raise awareness for rare…
Shire, Microsoft and Rare Diseases Europe have formed an alliance to try to  accelerate the time it takes to…
To mark Feb. 15, International Angelman Day, the Angelman Syndrome Foundation (ASF) has compiled a list of f 15 simple…
People with Angelman syndrome and other rare diseases need more psychosocial support, an Oregon State University study reports. A lot of the…
A group of designers from around the world will be showcasing their latest designs on April 28, 2018, in New…
The Angelman Syndrome Foundation (ASF) plans to award one- or two-year grants of up to $100,000 to projects that test…