The Picture-perfect Snow Day for My Angel

Over the years, I’ve learned many lessons from raising a child with Angelman syndrome. However, I never thought there would be a lesson from a snow day. Although snow is a magical thing for many people, that is not the case for my 11-year-old Angel, Juliana. The big takeaway from…

Temperature Sensitivity in Angelman Syndrome

On occasion, caregivers of children with Angelman syndrome report a sensitivity to changes in temperature, especially warmer temperatures. Here is information about temperature sensitivity, and why it might be evident in these patients. What is Angelman syndrome? Angelman syndrome is a rare genetic disorder caused by mutations related to…