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Recent Posts

• Thanks to Angelman syndrome research, I’m still hopeful for a cure
• Ube3a protein helps regulate brain connections during development
• Friends and routines help ease unexpected care for my Angel
• How I respond to being overwhelmed in life with Angelman
• $5M gift to UC San Diego supports gene therapy work for rare diseases
• A family copes: How to manage bowel incontinence in our Angel
• Ways of measuring outcomes for use in Angelman clinical trials detailed
• Accepting advice and trusting the professionals in my Angel’s life
• Trial data support Ovid’s decision to stop its OV101 program in 2021
• How maximizing parent-teacher relationships benefits my Angel