Seeing my 13-year-old Angel, Juliana, play in the water is nothing new for our family. But seeing her drink…
Sabrina L. Johnson
Sabrina L. Johnson wears hats as a wife, special needs mom, educator, freelance writer, and HR professional. Baking, reading, and gardening are her fun hats. When her daughter Juliana was diagnosed with Angelman syndrome in 2011, Sabrina searched for the right inspirational content. Not finding the positivity she craved, she began writing uplifting stories on her blog, Juliana’s Journal. Writing led to advocacy, and the e-book “Forward: First Steps on a Path to a Special Needs Life.” Sabrina writes to show that a life with challenges can still be viewed as a glass half full. She lives in Atlanta, Georgia with her husband, two daughters, and a very energetic Maltese.
At Bionews we’re committed to providing the most accurate, relevant, and up-to-date reporting for our patient communities. Our goal is to ensure that everyone has access to disease-specific information that is both trustworthy and easy to understand. You can read more about our editorial policy here.
Articles by Sabrina L. Johnson
Anyone who knows me, or has read any of my columns, knows that I crave simplicity in my…
I was disappointed to read the news recently about new data from a Phase 3 clinical trial of an…
When you’re living with a neurogenetic disorder like Angelman syndrome, you quickly learn that flexibility and change are necessities.
What is it about being overwhelmed that can make you try to do even more? Is it the need to…
When you’re living with Angelman syndrome, some topics are just hard to bring up. Incontinence is one of…
When advocating for a child with Angelman syndrome, it’s not always easy to let up on the reins and…
While packing up my 13-year-old Angel, Juliana, the other day, I realized how fortunate we are to have a…
My 13-year-old Angel, Juliana, had an incredible return to school last week. It’s not a newsworthy event, but it is…
My 13-year-old Angel, Juliana, doesn’t really play with children or work to make friends. Although interactions with others are part…