The Rare Diseases Clinical Research Network (RDCRN) has opened an online survey to better understand how the…
Articles by Mary Chapman
Are you thinking of enrolling your child in a clinical trial for Angelman syndrome? Here’s information that may help you…
The National Organization for Rare Disorders (NORD) has opened a financial assistance program for people in rare disease community…
Angelman syndrome is a complex neurological disorder characterized by symptoms such as scoliosis, walking difficulty, balance issues,…
Amicus Therapeutics has officially opened its Global Research and Gene Therapy Center of Excellence to advance the company’s…
Beginning on Feb. 29, Rare Disease Day, chapters from notable scientific books and clinical review articles covering rare disorders will…
An abundance of events are afoot around the world to mark Rare Disease Day 2020 on Feb. 29. The…
Whether by donating or cheering on the sidelines, people can show their support for the running team put together by…
The Angelman Syndrome Foundation (ASF) recently honored four individuals for their exceptional contributions to the Angelman syndrome community…
Scores of events are afoot worldwide to mark Feb. 28, Rare Disease Day 2019. The activities aim to raise awareness about…