If your child has Angelman syndrome and is going through puberty, it’s best to consider all aspects of emotional development…
Articles by Mary Chapman
As COVID-19 vaccination programs are being rolled out across the U.S., the Angelman Syndrome Foundation’s 15q Clinical Research Network…
The National Organization for Rare Disorders (NORD) is seeking individuals willing to share real-life experiences with rare diseases to…
Two patient advocacy groups have joined forces to present a unified voice when interacting with pharmaceutical companies and scientists looking…
Children and adults with Angelman syndrome can experience incontinence. Despite cognitive and behavioral problems associated with the neurological…
To empower and equip members of the rare disease community to engage state leaders in matters of importance to patients…
A photo of a bespectacled young boy, his red baseball cap slightly askew as he  enjoys time outside, will be…
Same But Different, a nonprofit U.K. group that uses art for social change, is inviting people to choose their…
The EveryLife Foundation for Rare Diseases has launched a scholarship fund in the U.S. to support individuals with rare…
It can be quite stressful and exhausting to care for a person with Angelman syndrome, a disease characterized by…