Here Comes the Sun
— Joelene Wand

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Joelene Wand is a lawyer from Sydney, Australia. Her son, Jude, was diagnosed with Angelman syndrome in 2024, at age 1. She hopes to provide strength and encouragement to caregivers while figuring out life with this condition alongside them. Her son’s enduring determination and positivity inspires her to be active, so when not weightlifting her son, she enjoys running, swimming, and pilates.

FAST’s Global Science Summit reminded us of the power of hope

The beginning of a new year is a hopeful and optimistic time. It’s symbolic of a fresh start, providing an opportunity to reflect on the past and embrace the future. Hope can be challenging…

November 5, 2024 Columns by Joelene Wand

Processing the complexities of our son’s happy demeanor

Prior to receiving our son Jude’s diagnosis of Angelman syndrome last April, when he was just 16 months old, we beamed with pride that he was a social butterfly who brought joy to…

October 8, 2024 Columns by Joelene Wand

Reflections after a year of early intervention therapy

In September, my husband and I marked a year since my son Jude, then 9 months old, started early intervention therapy, the standard of treatment for managing speech, movement, and balance disorders…

September 10, 2024 Columns by Joelene Wand

Overcoming fear after an Angelman syndrome diagnosis

At 11:12 a.m. on Christmas Eve last year, I sent a text. Our son, Jude, had just turned 1, and over the past four months we’d become increasingly worried that he wasn’t meeting his…

August 6, 2024 Columns by Joelene Wand

Here comes the sun after our son’s Angelman syndrome diagnosis

Nothing can prepare you for the beautiful and chaotic roller coaster of raising a child. For a brief moment, we felt as though the path we’d expected to follow went completely off course when…