Advocacy partner: Angelman Syndrome Foundation
About the Angelman Syndrome Foundation
The mission of the Angelman Syndrome Foundation (ASF) is to advance the awareness and treatment of Angelman syndrome through education and information, research, and support for individuals with Angelman syndrome, their families and other concerned parties. ASF is equally committed to each of our four pillars: Family Support through resources and programs, Clinics that connect families with medical experts, Research to find treatments and ultimately a cure, and Community through events that bring people together.
Contact: Amanda Moore – CEO
Phone: 800-432-6435
Email: [email protected]
Upcoming events
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About Advocacy Partners
The information above is provided by our partner. Learn more about our advocacy partners here.
When the world forgets our children
This article was provided by our partner, the Angelman Syndrome Foundation. It has been reviewed by Bionews for accuracy and relevance. The views and opinions expressed are those of the author and do not…
Read moreRecent Posts
- Recognizing the importance of exercise for Angelman caregivers
- When the world forgets our children
- Dosing begins in broader trial of Angelman syndrome therapy
- The guessing game involved in caring for a nonverbal child
- MVX-220 for Angelman syndrome earns FDA fast track status
- Starting seizure medicine has us grappling with anxiety and doubt
- Genetic medicine could target Angelman’s root cause
- ‘Urgent need’ for treatment drives GTX-102 study enrollment
- Being ‘othered’ is an invisible burden we unfortunately must face
- Gene therapy GTX-102 granted FDA breakthrough designation
