Advocacy partner: Angelman Syndrome Foundation
About the Angelman Syndrome Foundation
The mission of the Angelman Syndrome Foundation (ASF) is to advance the awareness and treatment of Angelman syndrome through education and information, research, and support for individuals with Angelman syndrome, their families and other concerned parties. ASF is equally committed to each of our four pillars: Family Support through resources and programs, Clinics that connect families with medical experts, Research to find treatments and ultimately a cure, and Community through events that bring people together.
Contact: Amanda Moore – CEO
Phone: 800-432-6435
Email: [email protected]
Upcoming events
ASF Research Symposium
8787 Keystone Crossing
Indianapolis
IN
United States
Bank of America Chicago Marathon
Chicago
IL
United States
About Advocacy Partners
The information above is provided by our partner. Learn more about our advocacy partners here.
Recent Posts
- Phase 3 Aspire trial of gene therapy GTX-102 doses 1st patient
- FAST’s Global Science Summit reminded us of the power of hope
- GTX-102 may help cognition in Angelman syndrome children, teens
- Burdine, Angelman researcher and parent, recognized for work
- Processing the complexities of our son’s happy demeanor
- Reflections after a year of early intervention therapy
- Children’s Colorado clinic named Angelman center of excellence
- Overcoming fear after an Angelman syndrome diagnosis
- Anxiety, repetitive behaviors predict sleep problems in Angelman
- Angelman syndrome treatment ION582 eases symptoms: Trial data