How to Build a Treatment Plan for School/Daycare for a Child with Angelman Syndrome

How to Build a Treatment Plan for School/Daycare for a Child with Angelman Syndrome

For parents of children with Angelman syndrome, ensuring their child has the best care at school and daycare can be challenging.

Building a treatment plan can help children receive the care they need at school, and make sure that teachers and caregivers have the information needed to provide it.

What goes into a treatment plan?

A treatment plan should be assembled with the help of the child’s physician. The plan should contain information about the child’s illness and symptoms.

Keep a list of your child’s diet, allergies, and medications in the treatment plan, as well as the dosage and times of administration of any medications. For each medication, list any side effects that your doctor has indicated may be a concern.

Discuss the treatment plan with the school

Make sure that your child’s teachers and caregivers are aware of your child’s treatment plan — what symptoms are expected, and any side effects of medications they should be watching for.

Speak with your child’s caregivers frequently to see whether they have noticed any changes in your child’s behavior or symptoms.

Update the treatment plan after every doctor’s visit

During every doctor’s visit, go over your child’s treatment plan and discuss any changes in your child’s symptoms. After the doctor’s visit, make any changes necessary to the treatment plan and update the plan with the school or daycare.

 

Last updated: Aug. 27, 2019

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Angelman Syndrome News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. 

Emily holds a Ph.D. in Biochemistry from the University of Iowa and is currently a postdoctoral scholar at the University of Wisconsin-Madison. She graduated with a Masters in Chemistry from the Georgia Institute of Technology and holds a Bachelors in Biology and Chemistry from the University of Central Arkansas. Emily is passionate about science communication, and, in her free time, writes and illustrates children’s stories.
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Özge has a MSc. in Molecular Genetics from the University of Leicester and a PhD in Developmental Biology from Queen Mary University of London. She worked as a Post-doctoral Research Associate at the University of Leicester for six years in the field of Behavioural Neurology before moving into science communication. She worked as the Research Communication Officer at a London based charity for almost two years.
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Emily holds a Ph.D. in Biochemistry from the University of Iowa and is currently a postdoctoral scholar at the University of Wisconsin-Madison. She graduated with a Masters in Chemistry from the Georgia Institute of Technology and holds a Bachelors in Biology and Chemistry from the University of Central Arkansas. Emily is passionate about science communication, and, in her free time, writes and illustrates children’s stories.
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